Journalist, Author, Blogger

When Mary gave birth to identical twin sons on Christmas Eve in 1988, she felt like she had won the lottery. But within two years, she knew her boys were not developing like others their age. Robert and James didn’t seem to notice if Mary was upset, nor did they miss her when she wasn’t…

Do I wish she didn’t have autism? You bet I do.

Autism consumes us, so much so that when non-autism trauma happens in our lives, it throws us. It pushes us to the very edge of our sanity. I haven’t written in a while, but I knew April was coming. I pledged I would write every day in April, as I have done in the past.…

Here’s a piece of advice for my fellow exhausted caregivers: don’t let it consume you. Acknowledge the stress, plan an hour or two or a whole day of stress-free living for yourself, and then look forward to losing yourself in it. I get a break from caretaking every other weekend when my daughter spends time…

Being a parent to a special needs child is both a blessing and a challenge. My daughter’s gestures and expressions of love bring me immense joy, but I also bear the weight of her struggles. Despite the progress we’ve made, I remain cautious, knowing that her behaviors could resurface. Yet, her moments of happiness remind…

Acknowledging my inevitable mortality was the first step. Planning for her life after my life is no easy task. We are on a waiting list for residential care. I want that care to be in place before I die.

I think they want us to give up. A fellow autism mom said this the other day, and it stuck with me. She was responding to my venting about the difficulty and complications of getting services for our kids. Everything is a fight. Everything. For more than 20 years, I have had to fight for…